WATERVILLE, NS - A fundraiser in Waterville will raise money to help pay for travel and medical expenses for a Berwick boy afflicted with a rare skull condition.
One-year-old Brayden Jackson has been diagnosed with Lambdoid craniosynostosis, a very rare type of non-syndromic craniosynostosis that only four out of 1 million babies are born with. A ticket auction is being held at the Waterville Fire Hall on Aug. 4 from 11 a.m. to 2 p.m. to raise money to help with medical and travel expenses.
Terri-Lynn Jackson, Brayden’s mom, said Brayden has already undergone a six-hour surgery to have metal brackets and wires put into his skull. He has what looks like two little antennas protruding from his temples.
Once a day, his parents have to turn the wires 1 mm to help expand and reshape his skull and make room for his brain, which is being pushed down into his spine. Jackson said her son might have to undergo three or four surgeries but he has been doing “amazing” since he has gotten out of the IWK Hospital in Halifax.
She said he loves being at home with his twin brother, Greyson. Although Greyson has given his twin some funny looks since the procedure, they still love playing and picking at each other. Brayden’s older brother and sister, Joseph and Charlie, have become very protective of Brayden and are very careful around him.
“My husband and I have found it very hard, especially with his next surgery coming up soon, but with Brayden being so happy, joyful and smiling all the time it’s hard to be upset,” Jackson said. “With all the love and support our family has, it has been easier on us.”
Kaitlyn Allen and Katie Schofield helped organize the ticket auction fundraiser. Schofield said she has been best friends with Brayden’s mom since elementary school. They graduated high school together and have never left each other’s side.
She said that after Jackson had the twins, they knew something was wrong with Brayden. Everyone hoped his skull would correct itself but he ended up having to undergo a six-hour operation. Schofield said she couldn’t imagine what the family has to go through.
Brayden will undergo another surgery in August to have the brackets and wires removed. There could be more surgeries ahead if things haven’t worked out as hoped.
“I just knew that I had to find a way to help Terri-Lynn and her family out, so Kaitlyn and I talked and we decided to do a ticket auction for the family to help raise money for the expenses they have to go through with the medical and travel,” Schofield said.
To make an online donation, visit the GoFundMe.com page set up in support of Brayden at https://ca.gofundme.com/brayden-lambdoid-crainosynstosis/donate/?upsell=cpgn_share.